Kingston sits in his current wheelchair. (May 1, 2014/FOX Carolina)
Kingston works on walking at Shriners. (May 1, 2014/FOX Carolina)
GREENVILLE, SC (FOX Carolina) -
Disney dreams are in the future for an Upstate 3-year-old boy who is battling a rare disease, but he needed help getting there.
Kingston is wheelchair-bound and in order to get to Disney World through Make-A-Wish and move around the park he needs a light-weight chair.
When Kingston was about 6 months old, his mother said he stopped growing. It took about three years for doctors to diagnose the problem.
They discovered he has a rare condition called spinal muscular atrophy, which is a progressive disease that prevents his muscles from strengthening, instead they weaken over time.
"It's really sad knowing that your kid can't walk. It's even sadder knowing he's going to lose the abilities that he has now," said Kingston's mom Amanda McQuinn. "He's going to get weaker every year, every day, every birthday. He's not going to be able to do something he could the previous birthday and that breaks my heart."
Kingston is getting help and physical therapy at Shriners Hospital for Children in Greenville. But it's not enough, especially for his trip.
So Kingston's family is raising money for a new wheelchair because they cannot afford it and his current chair weighs more than he does. The cost for the new chair is $4,000.
Kingston's mom posted on the Go Fund Me page they are now working to fundraise for $6,000 to raise enough for the entire cost. As of early Friday morning the family had raised about $2,100 then surpassed their $4,000 goal a little later. An anonymous donor gave $1,719 Friday morning. Click here to donate and support Wheels for Kingston.
Copyright 2014 FOX Carolina (Meredith Corporation). All rights reserved.
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