Upstate family heading to Washington, D.C. to advocate on behalf - FOX Carolina 21

Upstate family heading to Washington, D.C. to advocate on behalf of children's health

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Blackwood family (FOX Carolina) Blackwood family (FOX Carolina)
(FOX Carolina) -

Patients and families from children's hospitals across the country will travel to Washington, D.C. to advocate on behalf of children's health during the 14th annual Speak Now for Kids Family Advocacy Day.

The young champions will share stories of their healthcare journey with legislators to illustrate why all children need children's hospitals, and how public policy can influence their access to health care.

One Upstate family will take the trip in hopes of sharing Sam Blackwood's story. Sam was diagnosed with Fragile X Syndrome at an early age and struggles with emotional and behavioral set backs.

"It's a condition that primarily means he will have a learning disability throughout his life and also can come with other secondary diagnosis like anxiety, ADHD and autism," said Robin Blackwood, his mother. "So he struggles with those things as well."

Sam sees a variety of specialists and the family relies heavily on Medicaid. That's why the Blackwood's want South Carolina Congressmen to meet Sam. They want as many families as possible to pop into lawmaker's heads when they think about health care funding down the line.

"Everyone has a different challenge, a different story but we all have that common thread of wanting our children to be happy and accepted, included and understood," Blackwood said. 

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